Life in hospital mode

Grace has been in the hospital since Thursday. Today she’s on a little less breathing support. She’s seemed extra tired this time and it scares me . I don’t think she’s dying , yet, but I know one day I’ll have to face that happening, and that is not something I want to think about. I felt sad when she didn’t react to me today when I was talking to her and holding her hand. No gripping my finger . She even turned her head away from me, which made me think , at least she moved . Then she gave me a weak “Mmm-mmm”. Not the “Mmaaa” that she sometimes “says” but it was better than nothing. She’s tired and uncomfortable. She cries a little when they change her diaper, like something hurts when they move her . I feel so bad for her.

I just want to get her well so we can plan her 18th birthday celebration at the end of this month.

They have a small cafe/ food court thing here. It’s very expensive if you don’t order carefully. Read the menu or pay! I did pretty well for breakfast $4.06 , no drink . The view is nice from the cafe.

This is a very nice hospital and we are blessed and thankful to live close to it . I switched out with my husband last night and went home where I got a great nights sleep. Then I woke up and after two yummy cups of coffee, I had a very busy day cleaning and getting things set up at home so they can have a good week without me being home. Finally finished putting Christmas decorations away. Got groceries. Now I’ll be here for probably the next three nights . I may get a break if someone else can come stay with Grace. Historically, Grace has not recovered very quickly from pneumonia. I don’t expect it to be a short stay. But I hope I’m wrong!

My hard bed . Not too terrible , but not great.

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