Category: Lissencephaly/ Miller Dieker Syndrome
An Update About Grace: Sick But Okay
My Resume: 38 years of trying to “Work”
An Alternative to Legal Guardianship : Supported Decision Making
Happy Birthday to my daughter who was not supposed to live past age 3!
Going home !
Of sleeping in my clothes, eating too many Snacks, and Quiet Vigilance
Life in hospital mode